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Myotonic Dystrophy Patient Registry for Germany and Switzerland

This registry is aimed at all patients in Germany and Switzerland with a diagnosis of Myotonic Dystrophy type 1 or type 2/PROMM, a non-dystrophic congenital myotonia, or a periodic paralysis. This includes chloride channel myotonia (type Becker and Thomsen), sodium channel myotonia (e.g. type Eulenberg, Myotonia permanens, Myotonia fluctuans), and hyper-, hypo- and normokalemic periodic paralysis.

  • Learn more about the patient registry, the advantages of registering for you as a patient and the registration process.
  • Start the registration process and enter your details.
  • If you have already registered, login to view your details and to update them as necessary.

Klinikum der Universität München - Friedrich-Baur-Institut MD-NET

With the support of the Fondation Suisse de Recherche sur les Maladies Musculaires and of the Association Suisse Romande Intervenant contre les Maladies neuro-Musculaires

Fondation Suisse de Recherche sur les Maladies Musculaires ASRIMM