Myotonic Dystrophy Patient Registry for Germany and Switzerland
This registry is aimed at all patients in Germany and Switzerland with a diagnosis of Myotonic Dystrophy type 1 or type 2/PROMM, a non-myotonic congenital myotonia, or a periodic paralysis. This includes chloride channel myotonia (type Becker and Thomsen), sodium channel myotonia (e.g. type Eulenberg, Myotonia permanens, Myotonia fluctuans), and hyper-, hypo- and normokalemic periodic paralysis.
- Learn more about the patient registry, the advantages of registering for you as a patient and the registration process.
- Start the registration process and enter your details.
- If you have already registered, login to view your details and to update them as necessary.