Myotonic Dystrophy Patient Registry for Germany and Switzerland
This registry is aimed at all patients in Germany and Switzerland with a diagnosis of Myotonic Dystrophy type 1 or type 2/PROMM, a non-myotonic congenital myotonia, or a periodic paralysis. This includes chloride channel myotonia (type Becker and Thomsen), sodium channel myotonia (e.g. type Eulenberg, Myotonia permanens, Myotonia fluctuans), and hyper-, hypo- and normokalemic periodic paralysis.
- Learn more about the patient registry, the advantages of registering for you as a patient and the registration process.
- Start the registration process and enter your details.
- If you have already registered, login to view your details and to update them as necessary.
With the support of the Fondation Suisse de Recherche sur les Maladies Musculaires and of the Association Suisse Romande Intervenant contre les Maladies neuro-Musculaires